Holding your nerve in academia whilst managing multiple sclerosis
Category: Ethics
Piloting the better research interactions for every family (BRIEF) researcher intervention to support recruitment for a neonatal clinical trial: parent experience and infant enrollment
Recruiting for neonatal clinical trials is difficult for families and participation rates are low. We partnered with the DIVI (Darbepoetin plus sl…
Predictive testing for Huntington’s disease in a digital age; patient power with potential pitfalls
Introduction The Danish Digital Health Strategy, implemented from 2018, is an example of advanced and integrated digitization allowing patients immediate digital access to most data…
Public perspectives on healthcare professional-directed communication of hereditary genetic risks: a mixed-method systematic review
Genetic testing has revolutionized the identification of individuals at increased risk for various hereditary conditions, enabling early interventi…